Time: 17:00h Central European Time (e.g. Netherlands). Time Zone Converter: CLICK HERE
Topic: Neuromuscular Disease in Childhood: an update.
Description: The talk will provide a summary of the EPNS training course on Neuromuscular diseases taking place the days just preceding the webinar with an emphasis on up-to date diagnosis and management of muscular dystrophies, SMA, myasthenic syndromes, congenital myopathies, myotonic dystrophy, channelopathies, peripheral neuropathies, and acute disturbance of muscle function. Further, novel therapies for neuromuscular diseases presently in use or in the pipeline will be discussed.
Speaker: Professor Thomas Sejersen, EPNS Board Member, Professor and senior lecturer, Astrid Lindgrens Children’s Hospital, Karolinska Hospital and Karolinska Institutet, Stockholm, Sweden. Chair: Professor Dilek Yalnizoglu, EPNS Board Member, Professor in Paediatrics, and Paediatric Neurologist at Hacettepe University Faculty of Medicine, Department of Paediatric Neurology in Ankara, Turkey.
In recent years, several paediatric monophasic and multiphasic immune-mediated acquired demyelinating syndromes (ADS) like acute disseminated encephalomyelitis, optic neuritis and transverse myelitis have been shown to be associated with the presence of antibodies targeting myelin oligodendrocyte glycoprotein (MOG-ab), a small yet important component of the myelin sheet. Importantely, this entity here called MOG- associated diseases (MOGAD), is clearly distinct from other diseases such as childhood MS or AQP4 associated NMOSD. This webinar will therefore primarily address clinical relevant aspects of this y new disease entity such as role of MOG abs in the disease process, which technique to use for MOG-abs testing, spectrum of monophasic/multiphasic diseases associated with MOG antibodies, how to treat children with MOGAD in addition remaining open questions.
Free: Neurometabolic Training Course, Nov 13-14 2020
We’ve made the decision to transition the 4th EPNS Caucasus Teaching Course 2020 to a fully virtual event. This will help eliminate the limitations of having to travel to a single location and open the opportunity for more participants to attend.
Trainees and qualified paediatric neurologists who want to refresh their knowledge on clinical presentation, diagnosis, and treatment options in neurometabolic diseases.
Due to the current situation with the outbreak of COVID-19 we cannot see that it will be possible to hold the NNPS conference as planned in May this year as planned. Instead, we all need to focus on providing the best possible health care for our patients and families in these difficult times.
As we anticipate many conferences to be postponed to the second half of 2020 we have decided to set a new date for the 38th NNPS conference to tentatively March 2021. The new dates for the conference and training course will be announced as soon as possible.
The Nordic Neuropaediatric Society
Stockholm May 27-28 2020
This is the second announcement for the 38th meeting of the Nordic Neuropaediatric Society in Stockholm, Sweden. The meeting will be held in adjunct to the research meeting of the European Society of Paediatric Neurology thus creating a full week of neurology from both a clinical and a research perspective. Both meeting and course programs are now set and online registration will open via the webpage on jan 27th.
Abstract submission is open and has been extended to February 29th.
38th meeting of the Nordic Neuropaediatric Society in Stockholm, Sweden. The meeting will be held in adjunct to the research meeting of the European Society of Paediatric Neurology thus creating a full week of neurology from both a clinical and a research perspective.
Main meeting 27-28th may
The programme has four main topics: epilepsy, neurometabolic disease, neurovascular disease and neuromuscular disease. It is designed for paediatricians, paediatric neurologists, and trainees interested in paediatric neurology, with emphasis on clinical settings.
Training Course 26th may
The meeting is immediately preceded by NNPS training course, this year
“Cerebral Palsy – State of the art”
Attendance is limited to 25 participants to ensure an interactive course.
EPNS 7th Research Meeting 29-30th may
Following the meeting is the biannual Research Meeting of EPNS